Morning Musings
Good morning! My morning has started early, 3 am in fact. Wide awake, and full of gratitude. I`ve already accomplished quite a bit. Meds taken, breakfast for my brother and dishes washed.
My appointment went well. Yes, my disease progresses yet the testing I had did not show anything alarming that they were looking for. That I am grateful for. The majority of my issues stem from inflammation caused by my disease progression. I have to go back on steroids and take them for life now.
I had weened myself off after taking them for the past 6 years. They rob the body of calcium from my bones but without them my body revolts. Inflammation ensues and my body attacks itself. I made it almost eight months off. Though I been dealing with issues for over two months now. So, I surrender to the fact my quality of life on them is better. Gratitude, that something can help hold the line.
I took my first dose as soon as I got home and must say the difference this morning is remarkable. Even my mood this morning is one of hope instead of dread. Look out world here I come!
My doctor is a wonderful man. He is compassionate and has a great bedside manner. He breaks things down so I can understand and allows me to decide my care options. Keep writing, he says. My cognitive abilities are holding and he isn`t concern with where I am at this moment. We cross each bridge as it arrives, and I feel in control of what is happening to me. That is what makes him great!
He is also my brothers primary and took my brother as a patient, for me. He was concerned about me adding the care of my brother to my responsibilities but understood my reasoning. Purpose, he said, I see your brother aids you in feeling purposeful. He gets it and there is nothing more I can ask of him. It is important to have a doctor who you have a good repour with. It aids in helping face my prognosis and the challenges ahead.
The hope is within a few days, the inflammation will subside, and I can hurt less and move more. I`ll take it. I lost another 4.3 lbs. but maybe the steroids will hold any more weight loss to a minimum. That`s with eating two gallons of ice-cream since my prior visit. Usually, I wouldn`t mind shedding a few pounds, but it is muscle mass I am losing.
Soon, we will be leaving to take my brother to wound care. While he is in the clinic, I will visit my friend who is still in the hospital. The facilities are next to each other.
Granny is on the mend I stopped and saw her before my appointment yesterday. She has been getting around so much better. Hopefully soon she will drive over to visit Billy. They miss each other. 💞
Then the rest of the day I will putter with housework and meal planning. I might even nap, do a puzzle or painting this afternoon. Letting the day unfold as it begun, with gratitude.
✨Be the Light


Thanks for following me and commenting on my first post on Substack today Debbie! Happy to walk this path with you. “Letting the day unfold as it begun, with gratitude” resonated so much for me. I think I’ll sit with that a bit longer. You are inspiring and I’m very happy we connected.
Your writing makes me smile 😃 You are an inspiration ✨️ ❤️ I am glad that your appointment went well! Sorry you have to back on steroids 😞 I hope they help. I was on them for a short time for my inflammation too. Keep on truckin' girl ❤️